Participatory design meetings : genetic information included personal health record application

Özkan, Özlem
Aydın Son, Yeşim
Aydınoğlu, Arsev Umur
Yalçın, Ahmet
Döm, Hüseyin Alper
Yaldız, Burcu
Narcı, Kübra
Baloğlu, Onur
Human genome research has had an important impact on healthcare since it was first announced to be completed in 2003. As the clinical use of genetic and genomic testing increases, it is leading personalized medicine approaches. The effective use of genetic and genomic data in clinic requires careful management of the data, especially addressing the security, privacy and confidentiality issues. Personalize health record (PHR) systems on online and mobile platforms have the potential to cover these concerns as it will require participation of individuals to the management of their own health data. In order to determine the essential design components of a PHR, which can manage genetic and genomic data along with other medical records and healthcare data, we have applied participatory design strategy. PD involves stakeholders, end-users and the team into the design process in order to help ensure that the end-product meets the needs of users.
Citation Formats
Ö. Özkan et al., “Participatory design meetings : genetic information included personal health record application,” presented at the 10th International Symposium on Health Informatics and Bioinformatics, June 28– 30 2017, Güzelyurt, Northern Cyprus, 2017, Accessed: 00, 2021. [Online]. Available: