Turkish Adult Children as Caregivers of Parents with Alzheimer's Disease: Perceptions and Caregiving Experiences

Date

2019-04-01

Author

Ar, Yagmur
Karancı, Ayşe Nuray

Metadata

Show full item record

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Item Usage Stats

171
views

0
downloads

There is substantial evidence suggesting that Western and non-Western caregivers of patients with Alzheimer's disease have different caregiving experiences depending on the cultural values they adopt. Although family-centered constructs such as familism and filial piety have taken some attention, there is still a paucity of research on how cultural values and norms shape caregiving appraisals, coping strategies, and formal service use specifically in Eastern-oriented contexts. The aim of this study was to investigate Turkish adult children caregivers' perceptions of Alzheimer's disease and caregiving experience. Researchers conducted in-depth interviews with 20 primary caregivers and analyzed data with interpretative phenomenological analysis. First, most caregivers viewed family disharmony as the main cause of the disease. Second, although burden is evident in their accounts, caregivers reported positive changes during their caregiving experiences, as well. Third, caregivers employ religious/fatalistic coping and they benefit from social support during their caregiving experiences. Forth, most caregivers opposed to nursing home placement because they view it as a morally improper act; they are afraid of neighborhood pressure; they perceive caregiving as a child's responsibility; they do not want their children to do so; and they do not trust conditions of care facilities in Turkey. Findings indicated that Eastern norms and values might have differential impacts on Alzheimer's disease caregiving outcomes. Hence, we invite mental health professionals to integrate culturally sensitive aspects into the possible intervention programs targeting Alzheimer's disease caregivers from non-Western contexts.

Subject Keywords

Alzheimer's disease, Caregiving, Culture, Changes, Coping strategies, Familism, Collectivism

URI

https://hdl.handle.net/11511/30088

Journal

DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE

DOI

https://doi.org/10.1177/1471301217693400

Collections

Graduate School of Social Sciences, Article

Suggestions

OpenMETU
Core

Turkish families with deaf and hard of hearing children: A systems approach in assessing family functioning Fisiloglu, AG; Fışıloğlu, Hürol (1996-07-01) The aim of this descriptive study was to determine areas in which families of deaf and hard of hearing children need support for and enhancement of their children's habilitation process. For this purpose the Family Assessment Device (FAD) was given to 40 families with deaf and hard of hearing children and 20 families with hearing children, Results indicated no significant differences between families with deaf and hard of hearing children and families with hearing children on communication, roles, affective...
TURKISH EDUCATION SYSTEM’S UNDERSTANDING OF RISK: THE CASE OF CHILDREN OF DIVORCED PARENTS THROUGH THE EXPERIENCES OF COUNSELORS AND DIVORCED MOTHERS TOKYAY, SÜHEYLA; Beşpınar Akgüner, Fatma Umut; Department of Gender and Women's Studies (2022-7) This study investigates how MoNE's definition of risk affects “children with divorced parents” who are among the categories in the “Students with Risk Symptoms” list, and it aims to answer the question of “are children with divorced parents exposed to discrimination in their schools because of their family type”. In this context, in-depth interviews were made with 3 Counseling and Research Center staff, 4 counselor teachers and 15 divorced mothers who has school-aged child/ren. Other than this and content a...
Selective Fetal Growth Restriction in Dichorionic Twin Pregnancies: Diagnosis, Natural History, and Perinatal Outcome Antonakopoulos, Nikolaos; Pateisky, Petra; Liu, Becky; Kalafat, Erkan; Thilaganathan, Baskaran; Khalil, Asma (MDPI AG, 2020-5-9) This study aims to evaluate the natural history, disease progression, and outcomes in dichorionic twins with selective fetal growth restriction (sFGR) according to different diagnostic criteria and time of onset. Dichorionic twins seen from the first trimester were included. sFGR was classified according to the Delphi consensus, and was compared to the outcomes of those classified by the International Society of Ultrasound in Obstetrics and Gynecology (ISUOG) diagnostic criteria. Early sFGR occurred before ...
Cognitive development of infants in institutional care settings, comparison with the low and high-SES family groups. Ertekin, Zeynep; Kazak Berument, Sibel; Gunnar, Megan (null; 2019-09-01) Research findings have indicated that children who were reared in institutions (e.g. orphanages) increasingly lag behind in cognitive development the longer they are in institutional care (Colvert et al., 2008; Smyke et al., 2007). Most of the studies were carried out with the previously institutionalized children. However, there is less study of infant’s development who are currently residing in institutions. Therefore, the aim of the current study is to compare cognitive development of infants currently i...
Turkish mothers' attachment orientations and mental representations of their children Sümer, Nebi; Sakman, Ezgi; HARMA, Mehmet; Savas, Oezge (Informa UK Limited, 2016-01-01) Objective: This study aims to investigate a group of Turkish mothers' internal working models and their critical correlates, including their self-reported attachment orientations and their children's problem behaviours. Background: The mental representations that mothers hold for their children are a valuable source of information for caregiving behaviours, yet they have seldom been investigated in non-Western cultures. In order to examine the role of mothers' mental representations in children's behavioura...

Citation Formats

Y. Ar and A. N. Karancı, “Turkish Adult Children as Caregivers of Parents with Alzheimer’s Disease: Perceptions and Caregiving Experiences,” DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, pp. 882–902, 2019, Accessed: 00, 2020. [Online]. Available: https://hdl.handle.net/11511/30088.